Good afternoon...sorry it's taken me longer today to update!
Logan had a rough day and night yesterday. Today is not really any better. He's in quite a lot of pain and has been pretty much on pain meds continuously. They are continuing to monitor his fluid balances. It is very obvious when the medication has worn off as his catheter fills up very quickly!
There really isn't much more to report as it is now more of a waiting game than anything.
Dr. Thompson did say that had he only been a nuero patient, he would be leaving today or tomorrow. However, since there is so much to deal with from the endocrine side, that is what will keep us here longer. There is a CHANCE we could get out of here on Monday. It's all up to Mr. Logan...he has to eat (he has only had sherbert and a protein drink to date) and has to get up and about...he walked one lap this morning and then crashed!
Thank you again to all of you who are anxiously awaiting news and our homecoming!
Tim, Rhonda and LOGAN
Friday, January 11, 2008
Thursday, January 10, 2008
Thursday Jan. 10th
Good morning!
Logan is laying beside me resting comfortably. They (the nurses) are doing a wonderful job keeping his pain under control.
First of all I have to report that at about 11:30 this morning, Logan turned on the TV and started to cry when he realized he could see the score ticker at the bottom of the screen! He couldn't even see the big E at the top of the eye chart!!!!!!!!! What a blessing!
He had an MRI at 2:30 this morning. I assume this was to establish a baseline for future MRIs. Not sure why they had to wake him up in the middle of the night but they didn't ask for my opinion!
Logan has definitely developed diabetes insipidus. This is from the involovement of the pituitary gland. It is crucial that they stay on top of this. They are constantly monitoring things and drawing labs.
They are giving him steroids to help wih the swelling...
We have not yet seen a doctor today, not sure when but we should be meeting with the nuerossurgeon and the endocrinologist. Anxious! Will be sure to update everyone.
Rhonda
Logan is laying beside me resting comfortably. They (the nurses) are doing a wonderful job keeping his pain under control.
First of all I have to report that at about 11:30 this morning, Logan turned on the TV and started to cry when he realized he could see the score ticker at the bottom of the screen! He couldn't even see the big E at the top of the eye chart!!!!!!!!! What a blessing!
He had an MRI at 2:30 this morning. I assume this was to establish a baseline for future MRIs. Not sure why they had to wake him up in the middle of the night but they didn't ask for my opinion!
Logan has definitely developed diabetes insipidus. This is from the involovement of the pituitary gland. It is crucial that they stay on top of this. They are constantly monitoring things and drawing labs.
They are giving him steroids to help wih the swelling...
We have not yet seen a doctor today, not sure when but we should be meeting with the nuerossurgeon and the endocrinologist. Anxious! Will be sure to update everyone.
Rhonda
Wednesday, January 9, 2008
Great News from Vanderbilt
Updated 1/9/08 4pm
Logan's surgery is over and he is in ICU. The tumor was completely removed and believed to be benign. Further lab results will verify. To the surprise of the surgeons, the tumor was not a Craniopharynginoma. Rather, it was a rare tumor only documented 35 times in the world. It was not intertwined with the brain stalk and was easily removed without damage to the area. Obviously, these results are far better than anticipated.
Logan is visiting with family and friends, alert and talking. It appears that the vision in his right eye is intact at this time. Tests will provide more information in the upcoming days.
Watch for more updates.
Logan's surgery is over and he is in ICU. The tumor was completely removed and believed to be benign. Further lab results will verify. To the surprise of the surgeons, the tumor was not a Craniopharynginoma. Rather, it was a rare tumor only documented 35 times in the world. It was not intertwined with the brain stalk and was easily removed without damage to the area. Obviously, these results are far better than anticipated.
Logan is visiting with family and friends, alert and talking. It appears that the vision in his right eye is intact at this time. Tests will provide more information in the upcoming days.
Watch for more updates.
Surgery Update
Updated 1/9/081:45pm:
We just received word that the tumor is out! We do not know anymore at this point but the nurse said she was smiling!!!!! We are waiting to talk to the doctor when everything is finished...will post another update soon!
We just received word that the tumor is out! We do not know anymore at this point but the nurse said she was smiling!!!!! We are waiting to talk to the doctor when everything is finished...will post another update soon!
Tuesday, January 8, 2008
Monday, January 7, 2008
Thoughts from the Dame Family
Updated 1/7/08 9:30am
I'm not quite sure how to write what I'm feeling when in all actuality I am speechless.
At first what I thought was going to be a "journey" for the Dame family has turned into a "journey" for our entire community. I can honestly say that we are honored to have each and everyone one of you who has prayed, volunteered your time, donated items and/or money and most importantly gave us your hearts, travel down this road with us.
We are so very thankful to EVERYONE that showed up yesterday at the Rock-A-Thon to support Logan. What started out as a way to get Logan and some of the kids together before we left for Nashville turned into something so much more and we will be FOREVER grateful. There has not been an hour that goes by since the start of the Rock-A-Thon to right now as I'm typing, that I don't find myself going back to yesterday and feeling, once again, the pride that filled my heart as I watched family, friends and strangers embrace our son. Whether you realize it or not, you're all going to Nashville with us....thank you for that.
The Dame Family
Tim, Rhonda, Sidney and LOGAN
I'm not quite sure how to write what I'm feeling when in all actuality I am speechless.
At first what I thought was going to be a "journey" for the Dame family has turned into a "journey" for our entire community. I can honestly say that we are honored to have each and everyone one of you who has prayed, volunteered your time, donated items and/or money and most importantly gave us your hearts, travel down this road with us.
We are so very thankful to EVERYONE that showed up yesterday at the Rock-A-Thon to support Logan. What started out as a way to get Logan and some of the kids together before we left for Nashville turned into something so much more and we will be FOREVER grateful. There has not been an hour that goes by since the start of the Rock-A-Thon to right now as I'm typing, that I don't find myself going back to yesterday and feeling, once again, the pride that filled my heart as I watched family, friends and strangers embrace our son. Whether you realize it or not, you're all going to Nashville with us....thank you for that.
The Dame Family
Tim, Rhonda, Sidney and LOGAN
Updated 1/7/08 8:30am
Thanks to everyone who attended or helped with the Rock-A-Thon. It was a wonderful event and a special day in Logan's life, never to be forgotton.
Thanks to everyone who attended or helped with the Rock-A-Thon. It was a wonderful event and a special day in Logan's life, never to be forgotton.
Read today's article in the Courier and Press. http://www.courierpress.com/news/2008/jan/07/crowd-rocks-to-raise-funds/
View the 14WFIE video from the Rock-A-Thon.
http://www.14wfie.com/global/video/popup/pop_player.asp?
View the pictures from the Rock-A-Thon at RockAThon Pictures
For those still wanting a tee shirt, they will be sold at the Castle Junior High School on Tuesday, at lunchtime and at the basketball game at CHS on Tuesday night.
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